Cerebral Palsy

Posted on: Wed, Nov 19 2008 1:39 PM

Posted by: cherylberyl Posts: 281

All of a sudden my whole body spazed out the other day. I'm trying to figure out why. All of the muscles in my body got tight. I even took 5mg of baclofen an hr ago and I'm getting tighter and tighter as I'm writing this. I know 5mg is really low, so I think I will take some more... Here are the factors:

1. The other day it got really cold here. It's been in the 50s/60s and then since a few days ago, for example, the high today is 40. If I were to email my PMR she'd tell me its cold outside! Maybe I'm trying to invent things in my head? 
2. I'm bipolar too, and starting in feb I began to have semi-severe anxiety issues related to school. But I haven't really been anxious since friday when I got back an assignment I was dreading and got a 23/25. But being this spastic makes me wonder...
3. I'm a part time wheeler. Finding a balance between walking or rolling around her is hard. There are so many hills around campus. But if I roll too much it does cause me to get tighter. Am I just sitting too much?

How do you tell where increased spasticity stems from? Nightengale? Kara? Anyone else? I hate being turned into a worrier. Now I'm anxious that I might be anxious... This is causing a problem in my life in that now I have this intense need to be horizontal. Laying down on my stomach feels so good; I really get a good all over body stretch that way. Remember the episode of Sienfeld where Kramer wanted to live in his shower? If I could live in bed I'd be a happy camper, but I can't. It's causing a problem that when I crawl into bed I fall alseep, affecting my ability to fall alseep at night and then affecting my ability to get up in the morning.

Posted on: Wed, Nov 19 2008 2:25 PM

Posted by: Deltsssw Posts: 111

Hi Cheryl,

Well I'm experiencing similar symptoms with my Not being able to workout Like I'd like.  I would recomend light strecthes to try and keep you as loose as possible. Feel free to contact me privately if you'd like some more help.  I check my e-mail @ least once a day and my cell # is in my profile and my phone is on from 7amMST till 10pmMST.

cherylberyl:

All of a sudden my whole body spazed out the other day. I'm trying to figure out why. All of the muscles in my body got tight. I even took 5mg of baclofen an hr ago and I'm getting tighter and tighter as I'm writing this. I know 5mg is really low, so I think I will take some more... Here are the factors:

1. The other day it got really cold here. It's been in the 50s/60s and then since a few days ago, for example, the high today is 40. If I were to email my PMR she'd tell me its cold outside! Maybe I'm trying to invent things in my head? 
2. I'm bipolar too, and starting in feb I began to have semi-severe anxiety issues related to school. But I haven't really been anxious since friday when I got back an assignment I was dreading and got a 23/25. But being this spastic makes me wonder...
3. I'm a part time wheeler. Finding a balance between walking or rolling around her is hard. There are so many hills around campus. But if I roll too much it does cause me to get tighter. Am I just sitting too much?

How do you tell where increased spasticity stems from? Nightengale? Kara? Anyone else? I hate being turned into a worrier. Now I'm anxious that I might be anxious... This is causing a problem in my life in that now I have this intense need to be horizontal. Laying down on my stomach feels so good; I really get a good all over body stretch that way. Remember the episode of Sienfeld where Kramer wanted to live in his shower? If I could live in bed I'd be a happy camper, but I can't. It's causing a problem that when I crawl into bed I fall alseep, affecting my ability to fall alseep at night and then affecting my ability to get up in the morning.

Posted on: Thu, Nov 20 2008 7:27 AM

Posted by: mcjane Posts: 688

Stress will definately make you spasm.  There are certain people I have to avoid because just the sound of their voice will make my legs do their pretzel impersonation.  I used to let people vent on me figuring I was performing a kind of service...but my legs won't tolerate me being a toxic emotion dumping ground anymore.

I need to get on my belly more often....I know it's supposed to be one of the best things you can do....but it's hard to get there without legs crossing.  I am looking forward to getting a MOTOmed exercycle since research has shown in decreases spasticity.  Have you tried yoga?